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Polycythemia Vera
In a routine test, back in January, I found out my HB was 17.2 and PCV was 51.
Went to Haematologist and underwent EPO and MPN panel full, with one unit of phlebotomy.
EPO was 6.3 and entire MPN panel was negative.
After repeating CBC today, my HB is 16.5 and PCV is 56.
I still occasionally smoke, one a day or once in two days.
could this be Primary Polycythemia?
I am very scared.
Answers (2)
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You have to stop smoking ABSOLUTELY.
Even if MPN panel was negative, this could be primary polycythemia.
Erythropoietin is normal which suggests possibly primary.
But you can stop smoking fully, and see if the need for phlebotomy is decreasing after few months.
Now since the PCV is 56, you need to undergo phlebotomy. Please meet your nearby oncologist or haematologist and proceed with same.
Also make note of what was checked in the “MPN panel”. JAK2 , MPL, CALR . Were all three genes tested? Was JAK2 testing partial? (Only V617F) - Please check these also. You could send the photo of reports here .
Next Steps
Phlebotomy now. Monitor HB and PCV. Stop smoking completely
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Dr. Sherry Abraham
Medical Oncologist
2 yrs exp
Thiruvananthapuram
This is unlikely to be primary polycythemia. You can repeat Hb levels after 2 months. Smoking cessation.
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Disclaimer : The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.