MBBS, DM - Clinical Haematology
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Dr. SK Gupta strongly believes in comprehensive, personalized and compassionate treatment style for patient as well as family members.
My Self SYED MUSTAQ HUSSAIN age: - 66.( Occupation private employee RTD), this is regarding my personal treatment that I diagnosed with life threatening disorder but has come out with this in few months.
I am very active person doing all house activates without any trouble. I do my health checkups regularly, having gall bladder & pancreases problem, during my regular check on 08-04-2019 at Chalmadea Hospital at Karimnagar. After my check-up doctor asked me to have the following test i.e. CBP, RFT, LFT, completed the tests then after by seeing the reports chalmeda doctor suggested to meet Oncology consultant. I also read impression in reports came to know that my WBC cells were not in normal range i.e. 22000. I came to home with reports with deep concern about my life which is running without any huddles suddenly this news disturb myself and my family, I show them to my son he also cross checked with other doctor’s they also given the same opinion to meet oncology specialist without any delay. We were in a situation where we not able to take any decision what suppose to do. By seeing the treatment and cost and possibility of surviving of life over Internet completely collapse us mentally like blank mind and it’s very tough time not sure about the treatment and all basically it very hard to observe this thing .At last with a hope we plan to meet Hyderabad’s oncology specialists. We consulted a doctor at MNJ hospital lakdi ka pool on 16-04-2019. Again taken the all the tests like bone marrow & CBP blood tests and diagnosed with dangerous cancer disease i.e. AML (ACUTE MYELOID LEUKEMIA HYPERLEUCOCYTOSIS). Counselled us as its dangerous disease it should be treated with chemotherapy in between treatment there is 80% death chances treatment should start immediately if not it would be a problem and this treatment is very expensive.
The hope which we had before start’s to Hyderabad that we can go with a best treatment but AML news put us in a situation where we could not able to come up simply death situation. At this juncture WBC 40000 and blast cells 60%.
Later on discussion ‘s with my family and relatives ,they suggest me take ayurvedic treatment it s helpful to curable then I immediately went to Chhattisgarh state chota dongri area I have taken medicines accordingly and started using medicine over a period of month . During this course we went through the blood test, WBC cells reached 190000 (one laky ninety thousand).
After this we had discussion with cousin, she is a doctor in Australia suggest not wait for a while immediately visit oncology specialist DR S.K.Gupta based reviews over internet.
After the diagnosis, we met Gupta sir in his office at American Institute of Oncology. He always greets his patients with smile and I must admire his patience and his friendly approach to the patient and as well to the attendees.
Gupta Sir spent almost an hour in explaining us about the disease and the treatment options we could opt for.
His explanation of disease was exemplary and was extremely helpful. Only, if we understood what he was suffering from could we hope for a successful treatment.
The more Gupta sir talked, the less afraid we felt. And even before starting the treatment, I could sense in my father that he was already getting his confidence back. Due credit to Dr Sir.
We could not have hoped for a better doctor than him.
We were reluctant at first to go for any further tests, but he told us that it is imperative that we must go through a PET-CT scan and a bone marrow biopsy for staging.
He mentally prepared my father about the procedure and instilled confidence, that it is nothing more than a simple procedure.
I tolerated the pain quite amicably as he was already prepped up mentally for this.
It is that friendly nature and a confident approach made us believe in him more.
PET-CT confirmed, Meditational adenopathy and Few 3 small solid nodules noted in both lower lobes –indeterminate etiology.
During first phase treatment Gupta sir suggested to have donor’s also helped in searching donor outside and inside blood bank whenever we required Haemoglobin, WBC cells and Platelets.
During induction of first phase i had gone through side effects like Fever, cough ,hair fall urination ,frequent and joint pains during this phase Gupta sir helped a lot in terms of giving good advises, good treatment felt very comfortable talking to me which given new hope to myself and my family members. Successfully completed the first month course i went home for 15 days for recovery period. Gupta sir told us back 2 weeks of time.
After two weeks i.e on 1st July 2019 when i back to Oncology hospital at that time my platelets were increased to almost 683 lakhs and monocytes and eosinophils very less. At this time also Gupta sirs build confidence in me and to my family members this is because of injection which can be controlled.
Then MY Second Induction treatment starts, during this time taken 6 days chemotherapy and i went back to home for 3 days as recovery period. After 3 days i suffered with fever immediately admitted
As per Dr Gupta sir advise for support treatment again blood transmission and graefel injection for controlling fever. After controlling the fever i went back home for recovery.
Like this mentioned as above my treatment goes for two months (August and September 2019).
After completion of course my hemotology reports were in normal as a regular human. By the god grace till this date i don’t have any problems and working like as earlier. This is because of Gupta sir advises, treatment and good wishes to wards patients.
Also i want to thanks to haematology staff nurse namely Suma, Alice and geeta.I never forgets their way of handling me.
The treatment is safe *** ********* and this cancer is even curable if diagnosed in its early stage and is treated by a “Gold Medallist”. We are very much thankful to Dr Gupta sir in particular, hoping to see my father to be normal soon. What we have learned is that –we should not have fear about cancer word, it’s treatable, and curable as well. I can’t forget the support given by my friends who came forward in donating their Granulocytes, SDPs.
Received treatment for Classical Hodgkin's lymphoma, mixed cellularity subtype.
The patient is my wife aged 29 years.
About a year back (July 2018), my wife complained of burning sensation in her feet and described the sensation was like stabbing the feet with pins. We thought It was a classic symptom of being diabetic, so we did a random glucose test but it came back negative.
Week after week, she was developing new symptoms, a little dizziness and feeling fatigue all the time. Then we consulted a near-by physician in Hyderabad who advised her few tests like cbp, cue and ultrasound. The blood panel indicated that she was low on hgb (10) and the urine cultures revealed no bacterial infections. The Dr said that my wife does not have enough Iron in her body and she is anaemic. He prescribed her Iron supplements for a month and to do a follow up after a month.
She religiously took the Iron tablets daily and started on heavy protein diet, but after a month, the hgb levels reduced to 9.0. All her RBC component values were out of range. Although the WBC was in the normal range, but the neutrophils were high & lymphocytes were low. The ESR was consistently elevated. We went back to the doctor with the reports and he said, some-times one month of Iron supplements are not enough to bring the iron levels up and he put her on Iron tablets for 1 more month.
I started consulting other physicians for diagnosis, but they too advised the same treatment. Even after 2 months of taking Iron tabs, her condition was not getting stable.
The new symptoms were appearing each passing week. She developed shortness of breath, weight loss (6-7 kgs in 3 months), nausea and vomiting.
Some of them said – all her symptoms were due to anaemia and it is considered normal for Indian women to have a hgb levels at a 9-10 range. And concluded that the ESR is a non-specific test and is generally high for anaemic patients.
The other doctor ordered a ferritin (Iron stores in body), Vitamin b12 and a Vitamin D3 Tests to rule out any deficiencies in the body. To our surprise, there were enough Iron stores in the body. So, the physician concluded that the Iron stores are available in the body, but they are not getting absorbed due to Vitamin deficiencies. Thereafter, she was again put on the Iron Supplements along with Vitamin D3K tablets.
She took these medications for another month and in the next blood report, the hg level further got reduced to 8.7 g/dl. We Immediately started consulting specialists.
We consulted endocrinologist for hyperthyroidism, gastrologist for abdomen pains & for loss of appetite, ophthalmologist for any eye related head aches and a physician for general body pains.
Even after 2 months of medications and series of consultations with specialists, we were no where near to diagnosis. We were getting quite frustrated and my wife was already giving up and was getting fed up with doing many tests but not getting any confirmed diagnosis.
We knew, there was some underlying problem associated with my wife being anaemic. The doctors thus far, we consulted were trying to treat the symptoms but not the underlying cause. We started researching for specialists who deals in anaemia related issues or any blood disorders issues and every search was leading to only one doctor in Hyderabad “Dr S K GUPTA”.
We consulted Dr S K Gupta after 3 months of our health situation. He was doing a consultation at Olive hospital, Mehdipatnam at that time.
Dr Gupta sir was very patient and listened to all our problems, He evaluated all my wife’s symptoms and said she could require an Iron infusion need to be given intravenously. Even though he was a consulting doctor at Olive hospital, he ensured that she was given the proper treatment and as per our convenience.
The Iron Infusion did help her to re gain some of her strength and hg level shot up to 11 g/dl, but still there were some other symptoms that refused to die down.
For the first time in all our consultations with various doctors, Dr Gupta was the one who actually looked closely to elevated value of ESR and said this could mean there is some infection/inflammation in the body we need to find out it’s location and ordered for a CRP test.
The CRP test result were high, and he directed us to a general physician in the same hospital who advised for a chest XRAY.
The XRAY revealed some modulated opacities found near hilar region – likely lymph nodes.
Later a CT with contrast of chest was performed – The result indicated there were several discreet enlarged lymph nodal mass and largest of them was measuring 6cms.
A biopsy was conducted to determine the underlying cause of enlarged lymph nodes.
We were hoping for a TB, but it came out to be a Hodgkin’s lymphoma.
An IHC test was done on biopsy stains to determine the markers, type & sub type of lymphoma.
Finally – She was diagnosed with a Classical Hodgkin’s lymphoma, sub-type: Mixed cellularity.
Only, if had consulted Dr Gupta sir before, we wouldn’t have wasted 3 months.
Now, all we needed was our treatment options.
Dr SK Gupta
After the diagnosis, we met Gupta sir in his office at American Institute of Oncology. He always greets his patients with smile and I must admire his patience and his friendly approach to the patient and as well to the attenders.
Gupta Sir spent almost an hour in explaining us about the disease and the treatment options we could opt for.
His explanation of disease in layman terms was exemplary and was extremely helpful. Only, if we understood what she was suffering from could we hope for a successful treatment.
The more Gupta sir talked, the less afraid we felt. And even before starting the treatment, I could sense in my wife that she was already getting her confidence back. Due credit to Dr Sir.
We could not have hoped for a better doctor than him.
Not only does he explains the things in an easy way but also listens to our concerns and addresses our apprehensions.
We were reluctant at first to go for any further tests, but he told us that it is imperative that we must go through a PET-CT scan and a bone marrow biopsy for staging.
He mentally prepared my wife about the procedure and instilled confidence, that it is nothing more than a simple procedure.
My wife tolerated the pain quite amicably as she was already prepped up mentally for this.
It is that friendly nature and a confident approach made us believe in him more.
PET-CT confirmed of mediastinum nodal masses and BMB came back negative (which was a big relief). The cancer was staged IIb non-bulky with no BM (bone marrow) involvement.
Dr Gupta sir set up a treatment plan for my wife that was comprising of chemotherapy of 6 cycles and a radiation(if required).
Each cycle was administered in two sessions with 2 weeks apart. The chemo drug “ABVD” was given intravenously by trained nurses in haemato ward at AOI.
The Treatment plan also included an Interim PET-CT scan to evaluate how the treatment was working. The Interim PET-CT was done after 2 and half cycles and the result was considered on par expectation as per plan.
She underwent a full-fledged chemotherapy without a break in 6 months’ time.
After the treatment, we were advised for Complete blood picture test and a final PET-CT scan after 6 weeks of completion of treatment.
After a long time, we could see all her blood components were back in normal ranges and ESR was also normal.
The PET-CT showed Inactive nodal disease, however there were still few residual nodes in the mediastinum. We though It could be necrosis/fibrosis mass. The patient is now under observation and praise be to GOD, showing no signs nor any symptoms of the disease.
We will be doing regular follow ups now with blood tests to ensure everything is under check.
With the administration of chemo given intravenously, my wife developed a severe phlebitis at the injection site. It was very painful for her, and It became impossible to continue the chemo via intravenously.
Gupta Sir advised us to go for a PICC line insertion. It is peripherally inserted central catheter –a surgical procedure where in a vein like tube inserted into a body from arm’s veins to the greater veins inside the body. The thin tube will be inside the body and it will be connected to the extension pipe hanging out, through which the drugs are given and blood is drawn.
We started noticing that there were few air bubbles forming inside the picc line extension tube after some time and every 2-3 days, we had to go to hospital to do the aspiration of the bubble and flush/clean the tube. We brought this to Gupta’s sir notice. He informed us that, though it’s a problem, but it was not life threatening, and it only required some maintenance. We needed to weigh in the risks/benefits of having a picc line. We felt it would be better to continue with the picc line with a replacement of extension tube.
Even though the replacement was not much help, but we could not help but admire and commend the commitment of Dr Gupta for his zeal to resolve even a trivial issue associated with his patients.
The side effects kicked in immediately for my wife. She would feel nauseous for 2-3 days after every chemo session. But they got subsided gradually due to pre-medications that were given before chemo to relieve the nauseated feeling.
She started losing her hair after the 2nd cycle. There was little discolouration under her finger nails, but these did not deter her to fight this disease off.
Gupta sir warned us not to fall for any other herbs or outside medicines/supplements that are marketed as cure for cancer.
There were some side effects that were greatly managed by Gupta sir and his team by giving us appropriate guidance.
She never lost any weight, instead she gain weight.
No Vomiting occurred during the treatment course.
No complains of dizziness or headaches.
Less fatigue than before.
Over All, the side effects never did bother her to continue with the treatment.
As her husband, I feel proud that she fought this disease very bravely and had never let the burden on any one else. She was always extra cautious to ensure that she does not catch any infections. I also had to make our children to keep distance from her for some time. She withstood all the side effects and always hoped and prayed to GOD to see the light at the end of the tunnel.
Never ignore a febrile fever, anemia, un intentional weight loss or any swollen lymph nodes.
Instead of doing a self-treatment by taking over the counter medicines, consult a doctor or a specialist and get the tests done. The early this disease is caught, higher the chances of beating it and reduces a whole lot of financial burden.
Hodgkin’s lymphoma is one of the most curable cancers now a days if caught early.
In our country, we have people believing in rumours than fact. We have people trusting in non-proven medicines than in well researched medicines.
When we started our journey into this, many of our well-wishers advised us not to go for chemotherapy related treatment. They cited examples of their loved ones who succumbed to this treatment 10 year or 20 years back. But they failed to realise that these drugs are well researched and are getting better and better over the years. Few years back, sure they might have been less efficient and could have had higher side effects, but it’s different now and the drugs are always improving year after year. Today’s chemo drugs go through rigours researches and they go through many phases of trials before they could put it up on market for further use.
One more a very basic thing I learned from Dr Gupta sir and felt it worthy to share is – there r 2 types structure/organ in our body—solid vs liquid . Doc who treat solid organs (breast, lung, mouth, brain, prostate excetra) disorders – are either medical oncology or surgical oncology or radiation oncology based on requirements. Liquid organs (blood cells, their producing factory –bone marrow cells , their storage area – spleen, their developmental area – lymph nodes ) in our body are very much inter-linked to each other, disease can easily compromise their vital function leading to life threatening situation – so handle there 4 liquid organ disorders a very super specialised branch in oncology – HEMATOLOGY/HEMATO-ONCOLOGY is there. So before going to any oncology branch think which organ disease is there and who is best suitable oncologist.
The treatment is safe and effective and this cancer is even curable if diagnosed in its early stage and is treated by a “Gold Medallist”.
Treatment received for my wife for Castleman’s Disease
In April-2017, My wife’s felt an enlarged lymph node under her arms. We consulted my wife’s gynecologist who did an ultrasound and confirmed it is a mild case of infection leading to enlarged lymph nodes and she prescribed antibiotics for a week. But the size of lymph node did not return to normal. We then went to another hospital for consultation, where the doctor advised to do a FNAC test. The FNAC test results also confirmed that the enlarged lymph nodes were due to reactive adenitis (may be infection). She was then prescribed another set of high dose antibiotics for nearly 2 weeks, even after which the size of the lymph node did not return to normal.
In June-2017, my wife had severe stomach pain resulting in admission to citizens hospital under Dr. Sarada (Gastroenterologist). She then ran a series of tests to find out a reason for my wife’s stomach pain, but nothing came up positive.
Dr. Sarada then advised an open-biopsy for the enlarged lymph node to rule out any other reason for stomach pain. The pathological results of the lymph node showed that this is a case of Castleman’s disease (hyaline vascular type). We came to utter shock about the diagnosis and were worried as the doctors informed that this is a very rare disease and has very limited treatment options available in India. We were then referred to Dr. SK Gupta who is a pure hematologist practice only for liquid organs (blood, bone marrow, spleen, & lymph nodes) disorders for consultation. My wife now started to have fever for every 8 hours which was not subsiding, and no one was able to confirm whether the disease if causing these symptoms.
Dr. SK Gupta then ordered a few series of tests to rule out any other possibilities of this disease. The final diagnosis was confirmed that multicentric Castleman’s disease (Hyaline vascular form). Gupta sir then reassured that this can be treated without much side effects of the drugs. He was also very open and informed us a get an 2nd opinion, if we feel to go for it. We did get 2nd opinion from another hospital where they also agreed with Dr SK Gupta sir treatment.
We then decided to continue with Dr. SK Gupta and AOI for treatment. My wife received treatment with 6 cycles of rituximab weekly for 6 weeks and then oral steroids for 6 weeks. Gupta sir was very patient in answering all our queries during the treatment cycle. Just after 2 cycles my wife’s symptoms started to resolve. By the end of 6th cycle of rituximab my wife completely became normal. Gupta sir then asked us to continue steroids for another few weeks after which he tapered the dose of steroids gradually. By Nov-2017, my wife’s treatment was complete, and all her blood work up became normal and her lymph nodes reduced in size.
We are currently following up every 3 months with blood tests and every 6 months with ultrasound scans. The size of lymph nodes is currently stable and my wife symptoms are completely gone. We last followed on 1st March 2019 and with help of god blessings plus Dr SK Gupta sir guidance, exceptionally well care things are fine. My wife rejoined her job soon after treatment and now its almost 18months since treatment completed and we r thinking to have 2nd baby to compete our family.
Name: B ANASUJA Age:51yrs Sex: Female Address: Alampally Village, Rangareddy
My Mother got fever on and off since 2 months (April 2018) & decreased intake and and we visited lot of Doctors, but during those consultations with Doctors given medicines and it did not get cured. After observing for few more days we have admitted her in Mahavira General Hospital in Vikarabad, they said the blood is very low and injected 4 bottles of blood for a month. Later she was good for few weeks and again got fever and we visited some local doctors and underwent some blood tests which has been suggested, the blood is very low by looking at the reports. Then doctor suggested us to visit a better hospital with facilities. Then we admitted her at ESI hospital, there ESI Dr has referred us to to Indo-American hospital at Begum pet on 08/05/2018. She was immediately taken to Emergency room and put 2 packets of blood to her couple of times. They conducted lot of tests like Malaria, Typhoid, etc then they suggested her to undergo bone marrow test.
Then we had some delay to get a approval letter from ESI to other hospital where Bone Marrow test will undergo, Then we got a approval from ESI to Citizens Hospital.There they had kept in Emergency and conducted some more tests. There Dr.S k Gupta sir inspected patient B. Anasuja (My mother) and sent her to ICU because other condition was not good. She was having weakness, fever. In ICU along with blood tests bone marrow procedure was also conducted. Before bone marrow report came , Dr Gupta sir told that your mother is suffering from blood cancer. To know which type of blood cancer we will get further report in another 20-24hrs, based on that we will decide further. He said, most of time we don’t need bone marrow examination to find out whether somebody is suffering from blood cancer or not.
Next day sir told that my mother is suffering from AML (one type of blood cancer), Good risk (NPM1+ve, FLT 3 negative) which need urgent treatment and requires around 3-4 weeks of continuous admission. During this time she will receive chemotherapy in form of injections along with supportive care for infection, bleeding. Dr. Gupta sir had suggested us to find blood donors for granulocytes, SDP and keep them screened. We found blood donors in next 4 days and who had undergone blood tests for eligibility to donate. In parallel Chemotherapy was started (12.05.2018) with in 2-4 days of her admission and after first chemotherapy blood & platelets were injected to my mother. We have not seen any major problem in her after her chemotherapy. At end of 1 month(20.06.2018) again bone marrow test was performed to know her cancer status which revealed that her cancer is in control. We were very happy.
Dr Gupta sir advised for 3 more cycles of once a month chemotherapy to minimize chances of recurrence which were also completed on …..? without major issues except once she developed redness of eyes which also recovered .
We thank you all the doctors who has been a part of the treatment and especially Dr Gupta sir,we are very much thankful to Dr Gupta sir in particular,hoping to see my mother to be normal soon. What we have learned is that –we should not have fear about cancer word , its treatable , and curable as well. I can’t forget the support given by my friends who came forward in donating their Granulocytes, SDPs. If we fight as a team we can conquer cancer as well.
I B.Sujatha 37yr old w/o B. Srinivas from Simhadrinagar colony (Malkajgiri) would love to share my journey with my cancer(Lymphoma- DLBCL).
In June 2017 I fell sick, I visited my family doctor who is not MBBS but reputed in our locality and has been treating patients from many years. He tried many medicines on me to cure my problem but failed to do so. Frequently my temperature used to go up and down, very poor appetite and fatigue. In 6 months I have lost many kilos, people hardly recognized me. I became very thin.
My husband admitted me in RTC (Tarnaka) hospital as he works in RTC. RTC doctors sent me to the CARE hospital (Musheerabad) on 17/11/2017 there I underwent many tests and discharged on 20/11/2018. RTC hospital doctors gone through the documents and suggested two hospitals (Citizen American oncology and Omega). Fortunately we choose Citizen (American oncology). There they explained us what was the problem. It was like an earthquake to me and my family. My entire family busted into tears, I started to think about my two young sons what it would be like if I die. My condition was very serious I was unable to talk and walk , even I was unable to open my mouth to take food. In that situation I have admitted in American Oncology department on 27/11/2017.
My first doctor who attended regularly and treated me well. He used to talk about positive cases people who defeated the most dangerous . He gave me two cycles of chemotherapy. My heart was very weak to take chemotherapy then doctor gave me medicine to improve my health to bear chemotherapy ***** ****** ***** After two cycles my case was transferred to the Dr.S.K.Gupta who is a gold medalist. Dr.S.K.Gupta sir knows little Telugu but understood my feelings and what I wanted to say. Gupta sir listens to the patients with intense care. He gave me treatment for 6 cycles, that time in-spite of 2 cycles I was not able to stand without support. He re-assessed/ re-examined me properly and added few medicines in my ongoing chemotherapy with that I started to walk over few days.
I started observing changes in my body. Not only doctors, as well as staff treated me well, they used to talk very politely share success stories which helped to think positively.
Chemotherapy was completed in April 2018. During my chemotherapy, I lost my hair, my nails and foot became black. I was very worried about my baldness but in very few months my hair started re-growing. My nails and foot started to turn into normal. In very less time I defeated cancer now I'm normal.
On 31/8/18 my last PET –CT scan was done and results were normal. From the great doctors to the cleaning staff have been played a key role in my success of defeating deformed called "lymphoma".
Thanking is not enough to show my gratitude.
Zara Noor my daughter born Premature in 8 months on 03.01.2016 with less weight around 1.78 kgs then she admitted for 8 days .
After 6 months she is again admitted in Lotus Hospital due to Severe fever and rashes on the body so there she got treated over there around 10 days hospitalization CBC test was done regularly 2 times a day after day, there is a low platelet count. After doing all the tests, count was very low and they did Bone marrow Aspiration and diagnosis with Thrombocytopenia under evaluation/UTI infection after decreasing the fever platelets was 60-70 thousand they discharge us to review after 1 month.
After that we have consulted our family pediatric Dr for further expert advice he was preferred me to take my daughter to American Oncology Institute/Citizens hospital for further in the month of November 2016 with CBC report with 50 to 50,000 count at that time and she was advise us to be in regular follow up once in month with CBC report and told us there is no treatment available present. After weight loss happened, me and my family was shocked about the situation but she said to do again/repeat Bone Marrow Aspiration/ Biopsy for correct diagnosis after a month. She did Bone Marrow Aspiration (Biopsy) and diagnosed as Thrombocytopenia with Anemia. After that doc told us to wait for some days till the patient platelet down to 20,000.
In August 2017(20TH month age) my daughter was suffered with high fever and severe Thrombocytopenia with Anemia and she required SDP (platelets transfusion) because of low counts, which again happened a month later also.
After these my daughter was required regularly that platelets/Blood transfusion in every month it was a depression time for us but any how we got platelets/blood from one whats-app group AHIRAA Donors thanks to all of them who supported on humanity.
During this Supportive treatment our treating doc in AOI referred us to Dr S K Gupta sir for possibility of BMT. He explained about Bone Marrow Transplantation and about life risk (if do BMT than 5-15% risk and if don’t than much higher risk) and need a HLA matched donor for transplantation.
We met Dr Pragnya @ NIMS Hospital Genetic Department to meet to find the possibility of Genetic disorder.
Dr Pragnya after examining post and present history she written 1 Genetic test which is around 30,000 any how I arranged that money and did that test on 03.Oct.2017 and with in 45 days on 27.Nov.2017 I got the report and its confirmed that Genetic disorder is their. Said there is a possibility to cure from these problem thought BMT only after these report we were very sad/depress and panic situation for going to BMT transplant because it is very risky and anything will happen during this process.
And other thing regarding donor and money because I don’t know how we get donor and how we will arrange money because cant effort that expenses in spite of having Aarogya Bhadratha . I don’t know it will cover or not.
On the other site my father i.e Zara Grand father and Grand mother afraid about these transplantation because no doctor was given 100% guarantee of her success.
But me and my wife explain there is Do or Die situation for us, every Dr said transplant should be done as soon as possible for better results. After our family understood the situation and said there are ready with us.
In these days we also tried some Homeopathy medicines for a month but the problem was not cured. In between these days in Aug 2017 to May 2018 my daughter Zara was transfused 12 times platelets and 8 times blood transfusion and got fever and infection 4 times.
Finally my family consulted Dr S K Gupta sir where he re-explained clearly about transplantation and give long term success rate of 70% and told not to afraid and ask us to do HLA test for stem cell donation. Me and my wife was given HLA Sample at Citizen Hospital. After 15 days report has come with negative for both husband/wife got half matched. After seeing reports my mother and my family went into depression and it was a bad day at my house.
After that Dr S K Gupta sir asked to do HLA testing for my younger daughter Zoya Noor(16month old) as we are panic how she can give her stem cell. We were concern about her because she is also 17 months old baby. But sir explained nothing will happen to donor, we can take fresh stem cells from blood itself and even as low as 6month. But we gone with our 2nd baby HLA matching and finally my 2nd daughter Zoya was matched 100% , that was a very happy day for me and my family because without donor we can’t do Zara transplant.
As I am a Govt employee Police Dept in Telangana. I started my Govt Aarogya Badratha process for Bone Marrow Transplant for my daughter and got approval with in 15 days from ABS. I am very thankful to Chairman/ DGP of Telangana state who approved and sanctioned my daughter Bone Marrow Transplant expenses, it gave me a lot of relief and saved my daughter life.
Finally we got admitted for Bone Marrow Transplant at American Oncology Institute on 13 May.2018 under Dr S K Gupta. He said to arrange 5/5 donor for platelets and WBC I got some 3 donor for platelets but getting difficulty in finding for WBC donors but the treatment had started. BMT room’s atmosphere also a great experience it has silent, very clean atmosphere Already the treatment was started chemo medicine was given for 1 week. It was a difficult time for us thinking and praying that Zara will get well soon after chemo my 2 daughters Zoya Noor admitted and from her stem cell was collected on same day Dr S K Gupta sir transfused to patient Zara Noor my daughter the day was spend my family is panic and tension but luckily after 12-13 days of stem cells infusion, she showed good sign in her body. During these 30days hospitalization she did not suffered much (which we were worried as per Google search and our other relative information). There was no fever, Infections, loose motions , and even no platelets, WBCs were transfused . After 30days of hospitalization our family and my wife my relatives are very happy the way Dr S K Gupta sir and his team done their treatment.
We did prayers and thank to almighty (God) who gave new life again to Zara Noor.
And the way Dr S K Gupta sir prepared us to done BMT and his treatment was very excellent and caring toward patients is delightful.
We also Thankful to American Oncology BMT STAFF SPECIAL NURSES THEY WERE VERY FRIENDLY WITH MY BABY AND MY WIFE THE CARE AND MONITORING WAS VERY EXCELLENT BY ALL THE STAFF.
Dr Gupta sir told initial 6months to 1yr is very crucial and she may require re-admission and once on 45th days of BMT admitted with severe infection platelets again dropped to 40-50k but she recovered well and not its close to 6month post BMT and she is doing well.
Dr Gupta sir told that she is suffering from one genetic syndrome known as Hoyeraal Hreidarsson syndrome where its not just aplastic anemia there other organs like brain is also affected.
These disease Aplastic Anemia like cancer will hurt a lot for all family and disturb there life as my family suffered a lot even spend a single happy moment in life even you have very rich person no matters your health is important in life.
Just a step from bone pains to multiple myeloma…
Since 2014, my mother a former teacher , Age 62yr now retired was complaining about several bone pains that she was enduring within that period. Obviously, given that she was 58 years old at that moment, all our thoughts were focussed on what the doctor said: severe osteoarthritis. So she started arthritis treatment, went on some physiotherapist sessions. But over years the pain far from reducing, rather increase. She was not able to walk, she started using a wheelchair, and used to lie down on the bed all the day long. Bone pains were extremely painful. To alleviate the pain, we had recourse to a phytotherapist who concocted some drinks for the purpose. With drinks sometimes the pain reduced sometimes it did not. In march 2017, my mother was complaining about a huge pain in her thighbone, it clashed with the presence of my sister who is a doctor who went back in our country. Together they carried out some deep investigations on that leg, followed by urine and blood tests. There was a polemic between the doctors with the results: some doctors were thinking while looking carefully at the results of the radio about sarcoma and they offer to amputate the broken leg. My sister and another doctor keep going skeptical because they were suspecting something else. Examining carefully a radio shot made two years before, there was a stain on that thighbone already that could have drawn somebody who has only paid an accurate attention to detect early the disease we found out later. They were thinking among other possibilities that this could be multiple myeloma. And further investigations just confirmed what they were just suspecting. Bad plasma cells have already invaded the bone marrow (myeloma), pelvis, sternum and vertebras were also touched except the main organs: liver, heart, lung, stomach and so on. Multiple myeloma was active.
Multiple myeloma or Kahler disease when I first heard these two words it seems very strange and scholar to my ears, to explain it in another way, they used cancer. When you receive news that a closer relative of your own is suffering from cancer, what a shock!!! Both for the patient and the persons surrounding her. My sister tried to explain us what the disease was in reality and the chances of survival that our mother had therefore. At that moment more than 60% of the malignant cells have already invaded the bone marrow.
Next steps to be achieved were to repair the broken thighbone by a surgery, then to start a chemotherapy according to results other investigations (biopsy, urine test to find the monoclonal immunoglobulin a bad protein produced by the malignant cells). Given on one hand that in my country hospitals are not well equipped to perform that kind of treatment, that on second hand, the more we wait, the wors it will be for the progress of the illness, the family decided to send her in Tunisia.
To travel with a broken thighbone was a tough and serious affair! But despite plenty difficulties that arose all of a sudden, everything went well and she arrived in Tunis, with my sister who is a doctor. While being there, the surgeons performed a surgery on the thighbone in order to remove the part that was already damaged by the disease. They made a biopsy that confirmed the previous diagnostic made in my country, with the precision that the myeloma was not a secretory one. Meaning less bad toxins secreted, what a light of hope in the dark!
The surgery went well and we started the chemotherapy one month after ordering medicines from India (good quality and price rate). Three specific medicines involved in the process bortezomib, thalidomid, and dexamethasone with also their cortege of side effects. The chemotherapy lasted for four months. Very difficult moments she lived the day she had the drips, to lessen some side effects we use to put on her head while passing the drip a towel soaked in cold water to prevent hair loss.
While back home she was fighting against nausea with a cup of steaming ginger tea, honey and lemon. My sister had already planned her diet, showing us vegetables, sources of protein, fruits helpful to support the effects of chemotherapy. She was also encouraged to drink a lot of water to drain the toxins. After the third month of chemotherapy some neuropathy started touching the palm of her hands and the soles of her feet. We found out the fact of wearing socks and gloves decreases the prickling feelings so she started wearing both although it never stops until now. She continuous with reeducation sessions with the physiotherapist on the leg on which surgery was made. Family and friends try to surround her with all of our love and affection, we believe that mental strength is very important for recovering from disease that is why we keep thinking and sharing positively with her.
Another important lever to be positive is to pray, until now we keep praying, and all our energy to fight is drawn from there, and we are giving thanks for the little miracles already tangible.
After we finished the chemotherapy, we weren’t able because of previous financial efforts to afford a bone marrow transplant to pursue her treatment as told by the doctor in Tunis. In order to have an idea of how the disease is going on we carried out blood investigations each month to check anaemia, if there is less red cells it could be a sign that the myeloma was turning on. So she ate a lot food with a huge amount of iron green vegetables, dried nuts, beetroots , she continued with her ginger tea that time mixed with curcuma and pepper. She also took pregabaline to deal with her neuropathy, and ostenel to strengthen her bones. Her blood cells stayed in the range of 11 to 12. She spent nine months like that before coming to India to afford the BMT.
After the first investigations made in the hospital in India, the malignant cells regress to less than 5% in her body. Then she was admitted and started an autologous bone marrow transplant. It’s all about collecting stem cells from the patient before another chemotherapy. Then the day after, these stem cells were reinserted through a drip in the body of the patient. The last step was to manage the side effects as for instance to suck ice cubes one hour and
two before the chemotherapy starts. Other side effects are vomiting, loose motions, constipation, nausea, any pain: mouth wound, throat pain. Day to day they are controlled by
injections for vomiting and nausea, loose motions by tablets to reduce them, constipation by syrup to induce motion, we prevent mouth wound by frequent mouth washes, it is also recommended to drink a lot of water three to four liters per day.
A high level of hygiene is also needed, cleaning of room, frequently washing of hands before and after touching the patient, as well as food, sterilization of the cutlery, plates and glasses to avoid the slightest risk of infection. Finally, day to day, in the early morning, blood sample is collected in order to appreciate the increase or the decrease of determined blood cells (leucocytes, platelets, red cells and to implement a solution to fill the gap, to prevent an infection, to fight against one that is already there or on the contrary to support any noted improvement.
Although we are still in the recovery period after the BMT, I am now able to say that this Multiple Myeloma doesn’t sound as scholar as it was in the beginning, that it doesn’t frighten me as much as it was in the beginning even if this disease likes to be disguised: coming in frontline with the shape of bone pains. My mother would probably agree the same fact, because we learn to live with the disease with its side effects, and within all this there has always be a path of hope, light and joy where we walked.
To Dr SK Gupta
“Thank You” will hardly be enough.
Patient & Attendant (From Cameroon)
Dr. S K Gupta sir is a thorough professional regarding most of the aspects related to patient care, spent lot of time understanding the nature of the disease, past-history, medication etc and then came up with future course of action. He don’t need to flip through files across visits for anything as he remember. Very patient-centric approach, sir constantly says that it is your body that fight the disease for longer time and medicines are there to only help your body, If things are not good he first comforts the patient, family before slowly breaking the news and also suggest further course of treatment share with the all important family members.
My self K.Venkatesh from Amalapuram(AP).My father K Srinivasarao 48years old,affected by significant fall in heamoglobin and platelets.Dr. SK.Guptha sir treating my father who is suffering from Blood cancer i.e APML . When he was admitted to Amrican Oncolegy Hyderabd, he was very critical but after one month only he started feeling good and his vital body parameters were started getting normal .
SIR IS A GIFT OF GOD FOR PATIENTS
(Before consulted Guptha sir my father had facing so many problems , consulted many doctors and admitted at the hospitals frequently , some times felt very sad and loosed the hopes also of my fathers health condition, with all God blessing finely found the Dr.S K Guptha sir with my wishers advise through online) ,
Still treatment is going on and the most happiest thing is that now his blood reports and vital body parameters are as good as a healthy human being. It has given my family a hope that he will survive this fatal disease. All the credit goes to Dr. SK Gupta sir who is treating my father with all dedication and efforts. He has always motivated my father and gave him hope that he will be ok as treatment progress,
This all has happened due to Dr. SK Gupta sir.He always meets with beautiful smile on his face. Dr. SK gupta is very energetic and punctual. He is so good that my father waits for the day when would we meet him for regular checkup as he feels motivated after meeting him. I just want to tell everyone that patients and their family should not worry if Dr. SK gupta or doctor like him treating their patients. May god give him a long and healthy life so that he can give life to many who are suffering with this fatal disease.
Thanks to Dr SK.Guptaha sir from bottom of my hearts entire from the family.Today my Father is with us only because of Sir is a Gift of God for Patients,
Hello everyone, my name is Sheela Bhatt, 48yr,belongs to Bengaluru. I have been a housewife all my life leading a simple lifestyle with primarily a basic vegetarian diet. So, during November 2016 when I experienced a swelling in my right eye lid, I assumed it to be a simple because I did not have any pain. But to be on a safer side, my family and I visited Narayana Netralaya where my consulting doctor suspected the swelling to be cancer, hence suggested biopsy to confirm if it is cancer so as to help us plan our next few months of treatment. The biopsy results confirmed the dreaded cancer. Support from family, helped me overcome the scare and actually face the reality of fighting it. Extended family friend suggested Dr.SK Gupta who is an expert in the field of Stem cell transplant and an Hemato - Oncologist, to become our primary doctor. Neither I nor my family had any idea of whom to approach, but since Dr. SK Gupta seemed like a very good doctor, we approached him. Upon meeting him and discussing my case with him, I was instantly put at ease because he explained to me about the Lymphoma cancer- what is it ?, how can it be treated ? and the possibility of it recurring ? . Having knowledge about it really helped me with actually processing and dealing with cancer itself. Having Dr. SK Gupta as my doctor, helped me to believe that I will be able to overcome Cancer(T Cell Lymphoma) , so when the actual treatment plan was drawn up based on the extent of the cancer cells were distributed, even though it was 6 cycles of chemotherapy with 21 days gap between 2 cycles, even with the grueling prospects of this treatment, it always helped to know that I have an excellent support system in form of Dr. SK Gupta and my family. Dr. SK Gupta, explained to me in detail the possibility of side effects of chemotherapy, which usually starts after the 2nd cycle, side effects being, hair loss, stomach upset, frequent fevers. Since these were explained to me in detail, I was better prepared to the possibility of dealing with it. 4 chemotherapy cycles were completed in Bangalore, later Dr. SK Gupta shifted to Hyderabad to American Oncology Institute, Citizens Specialty hospital, but he never once dropped me as a patient. Since being motivated by him and taking the treatment, seemed to help me, we continued our treatment with him. His presence and motivation is one of the major things which helped me to overcome the side effects and focus on fighting the cancer. Once 4 cycles were completed, PET scan was done at to American Oncology Institute, Citizens Specialty hospital Hyderabad, where it was found that 95% of the cancer cells were destroyed, which is primarily due to love and support of family and my doctor. Autologous Hematopoietic Stem cell therapy is done to reduce the chances of the recurrence of my T cell Lymphoma. Having Dr. SK Gupta, really motivated me to stay positive and fight cancer, His support and motivation cannot be praised enough or appreciated enough. My family and I will always be indebted to him. For Autologous BMT I was in a sterile environment for around 20days and the experience was without any pain. I use to walk outside my BMT room two-three times a day and eat home made sterile food as well. At this point in time the caring and hospitality was very good, post that I was discharged. .
Tensions before treatment ? Truely speaking before chemo ,i thought its very high dose drugs, i may get very pain ,burning sensation ,i may not tolerate by taking chemotherapy, because we saw lot of side effect in net ,really i tensed a lot . After the doctor support and my husband support ,and one more thing i need to share that ,my aunty (my mother sister) also cancer patient ,she received 6 cycles of chemo (8 years back)now she is healthy and fine, by seeing these live example only i decided to take Chemotherapy.
Experience While chemo was on flow ? :- I received first chemo on 17/11/2016,really on that day i tensed a lot, my heart beat was increasing like anything, that it self i came to know that, chemo drugs will be given through IV fluids (in common language we call it as glucose bottle) ,in hospital before giving IV fluids nurses will put IV cannula ,while putting this i experienced slight pain full, but cannula will be removed by 2 days, after that they started chemotherapy ,i felt some what nausea. ,usually chemo drugs will be given for 1hour ,2hours,4hours depending upon drug and dose. Through cannula i experienced pain during first chemo, so in second chemo doctor explained about PICC LINE (its very new thing for all ) by this picc line also we can take chemotherapy. Compared to cannula its very very best ,we can keep it up to 6 months, with dressing once in 7-10days . As per my own experience picc line is very useful, no harm, no pain at all, we can take blood sample through picc line only, no need to prick anywhere, this my own experience , so, no need to worry while taking chemotherapy, just have a positive vibes insides and around you.
Fighting cancer, I have understood the importance of having a doctor like Dr. SK Gupta whose motivation and support has been unbelievable and very much needed along with the love, care and affection of my family. He never treated us like a patient but more like a family & friend. I would like to extend my heartfelt thanks to Dr. SK Gupta and his time and to my family Members,for their love and support.
with all best wishes.......
My self M. D Nabi from UP (Bareli).My father Buddha khan 57yrs old, affected by significant fall in two out of three blood cells(Hemoglobin and Platelets) requiring blood transfusion. First in September 2016 my father problem is started with Typhoid fever, jaundice, for which we admitted in Majidia hospital in Delhi for 4-5 days .They did blood test ,all blood parameters are low so, they advised to do bone marrow test so, we went to AIIMS Hospital in Delhi. Again my father is feeling not good,next day we went and admit in (Apollo hospital) Delhi. They transfuse blood and platelet and second day 1unit of blood transfusion, and on fourth day they did bone marrow test and Endoscopy ,after some days report has come ,doctor told in endoscopy report there is a liver damage ,but bone marrow test is normal ,there is a chance of cancer ,and he advised to do bone marrow test after 2 months ,totally we are confused then we discharged . After 1 week my father started to feel week ,and we did CBC test near one lab ,all blood parameters are low (HB, Platelets) for this reason we admitted in Ramamurthy hospital in Bareli (UP),Again same thing blood transfusion ,they prescribed to do some investigation i.e Hep B virus DNA Quantitative ,according to this report ,doctor said this report is positive so,90% have chance to get cancer ,but proper treatment also not given ,after that we discharged . After some days again we tested CBC ,same thing all blood parameters are low ,and this time we went to Aligarh hospital in UP, there doctor told this is 100% bone cancer so, they referred to AIIMS hospital . Totally in these 2 months we consulted plenty of doctors and hospital but there is no proper answer .,Actually I am working in Bangalore so, I told my parents to come here, then we started to search oncology specialized hospital as outside doctor told us that your father is suffering from cancer and finally we went to HCG at Bangalore in First week of Feb 2017. We took appointment for Dr Sekhar Patil (medical oncologist) then he saw all reports and referred to Dr SK Gupta (Hematologist) for expert opinion and treatment. This was the time when I got proper answer of my father condition which is not a cancer and not life threating which gave almost relief to me and my family who is going with sleepless night from past few months. He advised some blood tests and meanwhile started on Tab Revolade & Inj EPO weekly. After continuing this treatment my father is recovering - no more red blood and platelets transfusion. Today (20-05-2017) we came to Hyderabad to show Dr S K Gupta and his platelet more than 1lac, Hb more than 13.0gm%. What I have understood in last 6-7month is that its long term disease and there may be recurrence of this disease (nothing 100% in life before starting any work) but proper detection of the underlying problem, guiding the patient and family members is crucial. I know this treatment may not be new in the world but using it at time is at most important. Before coming to hospital I don’t know Dr Gupta but by looking his way of taking care of patient and family, I would like to recommend Dr Gupta for any hematological disorders (cancerous or Non-cancerous) consultation and/or treatment if logistic can afford it .