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JME Epilepsy
Hi, I was diagnosed with JME in 2016, right now I am on 1500MG levipil. Since 2016 I never experienced a single jerk while falling asleep. But recently from past 3-4 months I am having these jerky moments while falling asleep. Recently 3-4 months back my doctor asked me to stop levipil and continue only with oleptal and the very next day I experienced too many jerks so I consulted another doctor and he put me back on levipil 1000mg.But that didn't help. I have approached many doctors, they have added Clonazepam for 15 days increased levipil to 1500mg.it helped me only when I took Clonazepam but now once Clonazepam is over, the jerks are back. It only happens when I am trying to sleep. I never experienced any jerks while I was on levipil since 2016 but past 3-4 months have been tough. Is it because I was asked to withdraw levipil and then start again? Is it the medicine isn't working for me the same way? I am 27 and weight is 45. I have taken so many consultation plz help.
Answers (1)
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Dear mam,
Juvenile myoclonic epilepsy is an epileptic disorder.
In this disease patients use to have various types of seizures. However, myoclonus is the commonest one. But myoclonus in JME usually occurs in morning after awakening, during fasting. If you have myoclonus while going for sleep or during early stages of sleep, you have evaluate whether your sleep is adequate. Since sleep deprivation can aggravate myoclonus.
Next Steps
1. Consult a neurologist
2. Do an EEG now, to look for presence of abnormalities.
3. If abnormalities are present, additional drugs are needed
4. Avoid phenytoin, carbamazepine drugs
Health Tips
Improve your sleep hygeine. Take your meals regularly, don't get stressed, don't stay on your mobile phone for longer periods at night
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Disclaimer : The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.