Coats-Left eye Enucleated

My son has got Coats disease in his left eye, where we found at 3B stage (total retinal detachment) after a week of our diagnosis it was climbed to stage4 (retinal detachment+Glocoma), then we went to Sankara Netralaya there the doctors has forced us to enucleate the eye saying it is of no use keeping the eye ultimatley it will give pain to the baby and eye will shrink and fall in some time, as we were thinking if it was Coats then was there need of enucleation and they have got it might be Retinoblastoma. All the tests done were given conclusion as Coats only, but now I am blaming my self on listening to them and enucleated. My question is still I am not sure will it affect both the eyes i.e. his left eye aswell. As I came to know if the child has FSHD or some other diseases then it will affect both the eyes. So, know you let me know what all tests can we do to make sure in future he can see from his left eye atleast. PS: sorry for bad framing of words
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Doctor Answers (1) on Coats-Left eye Enucleated

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Dr. Anil Kumar Jain Bangalore | General Physician
Hello there.

I can understand your concern.
I do not agree with you.
First of all coats' disease was your diagnosis and you waited till it progressed to stage 4 you say to consult a opthalmologist.
Why was the delay may I ask?
You are to be blamed for the blindness of the child.
However, once retinal detachment has occurred, a visual recovery is next to impossible and also glaucoma had developed that means the intraocular pressure was rising  which also means that his situation was worsening.
In this case, laser therapy and cryotherapy to save the eye by ablating the vessels is not a choice and we are left with enucleation as the last option.
Also what the doctors said was right.
No doctor can force you to do something, all procedures are done after a informed and signed consent itself. If you didn't want any procedure to be done, you could have stepped back. No use blaming the doctors for doing the right thing. Rather blame yourself for delaying and causing loss of one eye.
The disease starts with gradual decrease in vision, why didn't you take regular visits to the opthalmologist I do not understand. Also, retinoblastoma and Coates disease have similar presentation, and in any case such a advanced disease calls for enucleation itself.
So there is nothing that could have been done otherwise.
Best regards.
Dr. Anil Kumar Jain.

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