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Suffering freom PNH

He is suffering from PNH. what should he do. Please help. He is suffering since 2 yrs. He is having medicine since 1yr feb. Blood red urine is observed. 4 unit of blood has been tranfused in the period of 2 years. He is also suffering from g6pd. Episodes of weakness and uncounciousness has been observed and hemoglobin around 4 has been observed twice this year. Currently his medication is going on from CMC vellore.
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Doctor Answers (1) on Suffering freom PNH

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Dr. Anil Kumar Jain Bangalore | General Physician
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Hello there. I can understand your concern. What he is suffering from is a rare aquired inherited disease. His red blood cells are not proper, they have certain factors on them which trigger a part of his immune system called the complement system which destroy the RBCs. And his urine is red because of this only, hemoglobin and hemosiderin are being excreted with the urine. Allogenic bone marrow transplant is the only curative treatment for this condition. Nothing more. Best regards. Dr. Anil kumar jain.
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