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Neurofibromatosis
My daughter is 16 years old. she is suffering from Cafe Au Lait Macules/Spots, and Numerous Neurofibromatosis skin tumors. I have shown her to many skin doctors and neurologists but there is no relief.
I would also like to mention that there is no record of this disease in both sides (mother and Father) of her family. Cafe Au Lait Spots are since birth and increasing in size gradually and skin tumors have been developed since around 2008 or 2009 and increasing in numbers as well as in size. however there is no serious problem in her day to day activity, studies etc. I am afraid that the disease may develop to some problematic stage in future.
So please provide me guidance on treatment and oblige
Answers (1)
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Dr. Anil Kumar Jain
General Physician
9 yrs exp
Bangalore
Hello there.
I can understand your concern.
I'm afraid neurofibromatosis has no cure.
You can have the big ones removed surgically.
But since there are many, there won't be any use.
I'm sorry.
Best regards.
Dr. Anil Kumar Jain.
Bangalore.
Answered
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Disclaimer : The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.