Tensor Tympani Myoclonus

2017-10-31 11:53:50
I have been diagnosed by a specialist Audiologist with Tensor Tympani Myoclonus. This is currently being treated with Clonazepam. I believe my specialist is hoping the anti-convulsant properties will treat the spasm. I am however finding the degree of sedation quite unbearable at times, I have tried Gabapentin to not much benefit, it seems Benzo's work best. I did read one doctor suggest beta-blockers may help this condition however it is so incredibly rare I don't know where to get advice.
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Tensor tympani myoclonus is a very rare condition. If diagnosis is certain then treatment depends on the severity of symptoms you are facing. Botox injection into the muscle is a excellent way to treat it but results are temporary and need to be repeated every 3 to 6 months. If nothing works then muscle can be cut from its attachment to middle ear bone which is a permanent treatment for this condition but with significant risk of facial nerve injury
Next Steps
Consult nearby ENT specialist for confirmation of diagnosis and appropriate treatment if required

Answered2017-11-03 00:09:10

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